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De-identification in Case Summaries

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Alcor is pushing to provide a higher level of confidentiality and anonymity of members and patients who wish it. As a result:

  • Case summaries no longer identify the location of a patient more precisely than the level of country and (within the USA) state.
  • The date of a cryopreservation will no longer be given except for the month and year. Timelines will begin at <month> at T+0 days. Subsequent days will be presented as “T+x days”. Case summaries will also no longer report confidentiality status.
  • Even if a patient is non-confidential, no name will be given in case summaries. This is to make it more difficult to connect a name in the List of Patients to that Case Summary and A-number, especially if they were the only non-confidential patient that same month.

For links to full case reports, see Complete List of Alcor Cryopreservations, and Complete List of Non-Confidential Cryopreserved Alcor Patients.

Many case reports are currently in the pipeline and will be published soon. Publication was delayed while Alcor decided on the most effective and practicable way of protecting confidentiality for those who request it.